Introduction
Receiving a diagnosis of dementia is a life-altering event not only for the individual diagnosed but also for their loved ones and caregivers. This essay aims to explore the harmful effects of dementia on personal relationships, critically discuss existing ethical practices regarding the way doctors break patients the bad news, and will also look into the nurse Registered who are an integral part of the Aged Care Assessment Team (ACAT) and epitomize professionalism and vast experience in dementia diagnosis and treatment, and finally, examine the networked or interdisciplinary.
Diagnosis of Dementia Changes Personal Relationships
The diagnosis of dementia can significantly alter personal relationships in various ways, often presenting significant challenges for both the individual diagnosed and their loved ones. One of the most immediate consequences of this shift is the change in the roles and responsibilities within relationships. The person diagnosed may have gradually been unable to perform the home duties activities and have to depend, in turn, on family or caregiver members (Calil et al., 2020). Often, it happens that the situations exchanges cause emotional distress to both parties; the patient who has dementia might feel the syndrome of loss of autonomy and identity, whereas the caregivers may experience feelings of guilt, frustration, and sadness.
Moreover, dementia can put pressure on existing communication and intimacy within the relationship. In time, affected people may find themselves dealing with speech-related problems, difficulty in memory retention and other cognitive issues that display as complications in carrying a conversation and participating in shared events (Achterberg et al., 2020). The disruption of communication puts the average person with dementia on notice in the sense that they will be experiencing isolation and loneliness together with their loved ones, which may worsen the emotional discomfort that they are going through as a result of the diagnosis.
Furthermore, the behavioral and psychological symptoms of dementia (BPSD) also modify intrapersonal relationships. The family members or the care personnel may find this to be inexplicable, distressing, and confusing if the person living with dementia is displaying an array of mood swings, agitation, aggression, or social withdrawal (Canevelli et al., 2020). Dealing with these behavioral changes may demand long endurance, knowledge, and specialized care methods to help everyone concerned provide their safety and welfare.
Finally, the development of dementia could additionally result in grief and bereavement in love relationships. The near ones are no exception to such awful circumstances they go through as they observe their suffering individual’s slow decrease of cognitive and functional abilities daily (Lin et al., 2021). Many family members who must deal with their loved ones’ dementia experience irreparable loss. This continuous process brings about sadness, helplessness, and anguish. The familiar faces of a lifetime inevitably change, and their futures become uncertain.
Breaking Life-Changing News to Patients
Breaking the news of a dementia diagnosis to patients requires careful consideration, empathy, and effective communication strategies to ensure that patients and their families receive the information in a supportive and compassionate manner. Several fundamental principles should guide health professionals in breaking such life-changing news. Firstly, clinicians should create an atmosphere that values trust and encourages patients to speak their minds freely. Patients and their families need to be assured that their feelings of distress and questions raised during diagnosis will be respected, and the questions should be answered to help them understand the illness better (Lee et al., 2020). It can be made possible by building up a secure platform that makes patients listening to their emotions safe and valued while at the same time giving them respect for their role as active decision-makers in their treatment.
Secondly, healthcare providers need to explain dementia clearly and in understandable language without jargon and ensure that patients and their families grasp the disease’s nature, the course, and the treatment options. Using plain language and visual aids can make understanding this topic easier and curb nervousness and doubt (Shin, 2022). In addition, doctors must be delicate and compassionate when diagnosing cognitive impairment and address the emotional effect on the patient and their loved ones (Ma et al., 2022). This includes having empathy, compassion, and active listening skills, validating the feelings and reactions of patients and their families, and emotionally supporting and encouraging them through the diagnostic process.
Additionally, medical practitioners should consider involving patients and their family members in decision-making concerning their care settings and treatment alternatives so that they can make autonomous decisions effectively and take responsibility for creating a customized care plan as per their needs, wishes, and values. Using this collaborative approach, a sense of control, self-determination, and power is cultivated, which makes their match as resilient to dementia as possible (Wang et al., 2020). Lastly, healthcare professionals must give the patients ongoing counsel, education, and resources to their families after the diagnosis. Such support should be informational, emotional, and practical, covering the patient’s and his relatives’ needs during disease development (Livingston & Costafreda, 2023). This can be as simple as linking patients and families with caregiver support groups, counseling services, stay-home assistance, and community solutions for welfare to make the tough condition of dementia manageable and accessible for coping.
Role of the Registered Nurse in ACAT for Dementia Diagnosis
Registered Nurses (RNs) play a crucial role within the Aged Care Assessment Team (ACAT) in the case of a dementia diagnosis, contributing their specialized skills and knowledge to facilitate comprehensive assessment, care planning, and coordination of services for individuals with dementia and their families (Haller et al., 2023). Firstly, RNs provide a holistic assessment of individuals with dementia to evaluate their physical, cognitive, functional, and psychological needs and the degree to which activities of daily living (ADLs) may be impacted (Hayley et al., 2021). This process consists of information gathering from different sources, for instance, the individual and their caregivers, other health care providers, and others for developing a picture of the individual’s health in which the unique care needs and preferences are put into focus.
Secondly, RNs work hand in hand with interdisciplinary teammates such as doctors, social workers, occupational therapists, and other allied health care personnel to design personalized care plans that address the diversified status of dementia patients and provide the best quality of life possible for sufferers (Cohen et al., 2020). This, therefore, entails facilitating avenues for obtaining various social services that include programs for dementia care run at community levels, respite care, facilities for rehabilitation of the mind, and specialized dementia care facilities.
Moreover, RNs teach, support, and, of course, counsel patients, as well as their relatives and individuals with dementia, to help them make informed decisions about their care and treatment options (Aranda et al., 2021). RNs will be very important in providing the rights and wishes of dementia patients and advocating for their patient’s preferences and dignity to be considered throughout the care process.
Involvement of Health Professionals in Diagnosis, Care Planning, and Treatment
In addition to Registered Nurses (RNs), a multidisciplinary team of healthcare professionals collaborates to support individuals with dementia throughout the diagnosis, care planning, and treatment process. These healthcare workers bring in their unique talents and ideas not only for the management of dementia patients but also for solutions for various families with dementia members (Santos et al., 2020). Firstly, general practitioners, neurologists, and geriatricians are the main physicians responsible for diagnosing dementia, carrying out comprehensive medical examinations, and managing concurrent medical conditions. They may choose lab testing to detect necessary medication levels and subscribe to it to treat symptoms, observe the disease progression, and then offer medical monitoring support and care.
Secondly, community workers guide the social-emotional support, advocacy, and counseling of dementia patients and their families by addressing the concerns of organization, finances, and lifestyle arising from diagnosis. These health services help to maintain social connections and enhance access to community resources, support groups, and respite care to facilitate the social and emotional well-being of people with dementia and their caregivers (Yassine et al., 2022). Besides, occupational therapists evaluate the functioning of individuals under their care and what the needs of the respective environmental domain are, laying out interventions to facilitate independence, safety, and overall quality of life. The therapists may propose particular devices, for instance, wheelchairs, ramps, and adapted gadgets, to ensure independence and participation in thorough activities and give one the best chance to be functional.
Furthermore, speech therapists deal with speech difficulties, which lead to difficulties in swallowing, which in turn give rise to communication problems and deterioration of quality of life. Another group responsible for the positive impact of mental health on dementia patients is mental health professionals who provide assessment, counseling, and psychiatric treatment for individuals with the disease who experience emotional problems, behavioral symptoms, and distress. These pain medications alleviate depression, anxiety, agitation as well as other psychological complications of chronic illness. As a result, patients can live healthy, emotionally well-balanced lives.
Conclusion
To conclude, a patient diagnosed with dementia is not only one who experiences adversity but also profoundly affects their relationships, family, and caregivers. Clinicians provide this miraculous life-saving function by understanding the potentially devastating impact of delivering the news in a compassionate, clear, and continuous manner that the patients need. Through the Aged Care Assessment Team (ACAT), nurses are registered as part of a comprehensive assessment to determine care plans for patients with dementia. The rest of the healthcare professionals, such as social workers, physicians, occupational therapists, speech therapists, and mental health specialists, join together to offer the patients with dementia and their families comprehensive care and support.
References
Calil, V., Elliott, E., Borelli, W. V., Barbosa, B. J. A. P., Bram, J., Silva, F. D. O., … & Caramelli, P. (2020). Challenges in the diagnosis of dementia: insights from the United Kingdom-Brazil Dementia Workshop. Dementia & Neuropsychologia, 14, 201-208.
Lee, J., Ganguli, M., Weerman, A., Chien, S., Lee, D. Y., Varghese, M., & Dey, A. B. (2020). Online clinical consensus diagnosis of dementia: development and validation. Journal of the American Geriatrics Society, 68, S54-S59.
Lin, P. J., Daly, A. T., Olchanski, N., Cohen, J. T., Neumann, P. J., Faul, J. D., … & Freund, K. M. (2021). Dementia diagnosis disparities by race and ethnicity. Medical Care, 59(8), 679-686.
Achterberg, W., Lautenbacher, S., Husebo, B., Erdal, A., & Herr, K. (2020). Pain in dementia. Pain reports, 5(1), e803.
Wang, H., Li, T., Barbarino, P., Gauthier, S., Brodaty, H., Molinuevo, J. L., … & Yu, X. (2020). Dementia care during COVID-19. The Lancet, 395(10231), 1190-1191.
Canevelli, M., Valletta, M., Blasi, M. T., Remoli, G., Sarti, G., Nuti, F., … & Bruno, G. (2020). Facing dementia during the COVID‐19 outbreak. Journal of the American Geriatrics Society, 68(8), 1673.
Shin, J. H. (2022). Dementia epidemiology fact sheet 2022. Annals of Rehabilitation Medicine, 46(2), 53.
Cohen, G., Russo, M. J., Campos, J. A., & Allegri, R. F. (2020). Living with dementia: increased level of caregiver stress in times of COVID-19. International psychogeriatrics, 32(11), 1377-1381.
Aranda, M. P., Kremer, I. N., Hinton, L., Zissimopoulos, J., Whitmer, R. A., Hummel, C. H., … & Fabius, C. (2021). Impact of dementia: Health disparities, population trends, care interventions, and economic costs. Journal of the American Geriatrics Society, 69(7), 1774-1783.
Hayley, S., Hakim, A. M., & Albert, P. R. (2021). Depression, dementia, and immune dysregulation. Brain, 144(3), 746–760.
Ma, K. S., Hasturk, H., Carreras, I., Dedeoglu, A., Veeravalli, J. J., Huang, J. Y., … & Wei, J. C. (2022). Dementia and the risk of periodontitis: a population-based cohort study. Journal of Dental Research, 101(3), 270-277.
Haller, S., Jäger, H. R., Vernooij, M. W., & Barkhof, F. (2023). Neuroimaging in dementia: more than typical Alzheimer’s disease. Radiology, 308(3), e230173.
Yassine, H. N., Samieri, C., Livingston, G., Glass, K., Wagner, M., Tangney, C., … & Schneider, L. S. (2022). Nutrition state of science and dementia prevention: recommendations of the Nutrition for Dementia Prevention Working Group. The Lancet Healthy Longevity, 3(7), e501-e512.
Livingston, G., & Costafreda, S. (2023). They are preventing dementia through correcting hearing: huge progress, but there is more to do: the Lancet Public Health, 8(5), e319-e320.
Santos, C. D. S. D., Bessa, T. A. D., & Xavier, A. J. (2020). Factors associated with dementia in elderly. Ciencia & saude coletiva, 25, 603-611.